I am not a doctor. I am providing information based on experiences that my mom has with natural remedies. The purpose of this blog is to help folks to educate themselves. Use this information with your own discernment.

14 October 2009

Lewy Bodies, Can a Change in Diet Help?

We're pretty certain that my mom has Lewy Bodies Dementia. The symptoms are similar to Alzheimer's so patients are frequently misdiagnosed.

LBD comes on suddenly after a tramatic event. Sleep walking, hallucinations of people and wild animals. She's been so confused sometimes that she has no idea who I am. Her lucidity comes and goes.

As I've been doing all along I've been researching food and how my mom reacts to it. I read somewhere (I need to do a better job saving those links to include in my posts) that tomatoes, potatoes, eggplant, tomatoes and peppers should be avoided by folks with LBD.

I made eggplant parm, with out bread crumbs. It included tomatoes and eggplant. My mom had a terrible night sleep. This was last week, I think it was Wednesday night when I was up all night with her, doing my best to help her to relax and sleep. Nothing worked.

My mom agreed to cut out her favorite foods, she is of Italian decent and absolutely loves Italian Cuisine, but she wanted to see if it would help stop the crazy nights. She doesn't like the crazy nights at all, they scare the heck out of her.

Since she cut out all vegetables from the Deadly Nightshade of plants she has not seen "the man", "the lady" or the wild animals under her bed at night.

Ashwagandha works to help her to sleep through the night and wake up feeling refreshed and happy the next morning. It also helps me to sleep because my mom isn't waking up. I can finally rest and sleep at night, soundly, for the first time in years. Yay! The dark circles under my eyes are going away.

Currently, we have cut out gluten - wheat, barley, rye, rice and oats. She eats quinoa grain and Amaranth, older grain strains that have been around for thousands of years, loaded with nutrition. We eat seeds, like sesame, flax and fennel.

I've found that if she eats anything baked with baking soda, even the aluminum free kind, she has a problem with hallucinations and sleeping. Unfortunately, gluten free bread gives her trouble too... bummer for her since I figured out how to make it taste delicious.

Fresh organic fruit, dark leafy greens and lean meat like chicken and fish, is the diet that helps her to have more good days.

I'm learning how to live with Lewy. I'm doing everything that I can to help my mom have more good days than bad ones.

She's doing puzzles during the day and playing her keyboard. She enjoys living upstairs in our Master Suite, she feels safe.

Brian and I love living downstairs, we feel like we finally own the house.

Today is a GREAT day! Josie got her sleep and Lewy doesn't seem to be anywhere in sight.

1 comment:

  1. Update: November 3, 2012

    My mom has been in a home since May 27, 2011. She declined, was put on hospice, I made arrangements for her funeral and began to wait for her to die. Mom is on one high blood pressure medicine and taking all natural remedies to manage agitation and insomnia.

    I began to give her beet juice in March 2012 when she stopped eating. She came to life and was able to recognize me as well as walk once more. August 15, 2012 my mom was discharged from hospice.

    Our Naturopath Doctor came across a discovery another care giver had made with curing his mom's dementia. Lysine. My mom has just started taking 1,000mcg 2x's per day. It seems to be helping her. She is able to feed herself once more.

    read Brad Pitman's inspirational story. "Ma's Back." Brad is the man who discovered this cure for folks with diarrhea, dermatitis, dementia... Pellagra ... A niacin deficiency disease that is cured with the amino acid Lysine.